Not sure what I can do but I share your info with my local support group.
I totally agree with yourself and Dr Mischley. I am reversing my PD using many things and I am confident I will get even better. I am trying DMSO and MSM and struggle with the smell lol which stops me taking higher, consistent doses but I have hope smaller doses long term will work.
I have tried drinking broccoli tea but found the process difficult. My latest novel experiments are hbot, lithium, ginkgo, dmso, MSM, and about to start nicotinamide riboside. I'd like to try an NAD IV drip but the cost is prohibitive.
Something that has also provided great relief is low dose naltrexone which helps immensely. I've read it works on toll4 and ogfr pathways which may slow progression they think. I wish this info was more well known to people.
Good to read that you are doing well Jean. Only when you dig deep into Parkinson's do you realise just how badly patients are treated without them realising. Fyi, I will be reporting on a new and much simpler method to make Broccoli Seed Tea very soon.
I am ready to start my husband on Broccoli Seed Tea. Should I wait?
In the mean time I was wondering if Distilled Water could be used instead of Deionized water? Also How much tea should I start him on? He’s not a big man. I was going to start with one dose per week for a while (what ever that means).
I was looking for a link to your FB group to get more information without bothering you. Could you put in a link for me?
Thank you for your help and continued research!! Have a fabulous day!
The glucoraphanin content of broccoli seeds varies from about 35µm/g for regular seeds to to about 70µm/g for high-glucoraphanin seeds. It is important to begin using BST at a very low dose in order to find the dosing regime that suits your particular case and your sensitivity to BST. For most people this corresponds to the quantity of broccoli seeds containing between 25µm and 35µm of Glucoraphanin (0.8 to 1.0 g of regular seeds, half of that for high-glucoraphanin seeds). Start low and slowly increase the dose over several weeks until you feel an improvement in non-motor symptoms. Stabilise at that dose for several weeks. Note that an increase in urinary urgency is a sign that the dose is too high. After a few weeks you may consider increasing the dose again by 20-30%. The dosing frequency should not exceed twice per week. Distilled water is fine to use.
How much naltrexone and when? Any links for this? I used just 2mg for my prostate cancer 16 years ago with dosing recommendations from Low Dose Naltrexone website ldn.org I think. I had heavy occupational exposure to tce and have tremors.
I was just diagnosed with early onset PD by the exact physical exam you described. I’d like to learn everything I can to stop my symptoms from progressing. Thank you.
Celery juice helps with my hands essential tremor. Would like any early diagnosis of Parkinson's as I am getting upper spine and neck tremors in bed. I am 62 in Aug. My friend/neighbor Ed just died at 86 with Parkinson's. Kaiser appt with neurologist said not Parkinson's because I could feel the doctor poking the needle into my skin all over my body evenly.
Not sure what I can do but I share your info with my local support group.
I totally agree with yourself and Dr Mischley. I am reversing my PD using many things and I am confident I will get even better. I am trying DMSO and MSM and struggle with the smell lol which stops me taking higher, consistent doses but I have hope smaller doses long term will work.
I have tried drinking broccoli tea but found the process difficult. My latest novel experiments are hbot, lithium, ginkgo, dmso, MSM, and about to start nicotinamide riboside. I'd like to try an NAD IV drip but the cost is prohibitive.
Something that has also provided great relief is low dose naltrexone which helps immensely. I've read it works on toll4 and ogfr pathways which may slow progression they think. I wish this info was more well known to people.
Good to read that you are doing well Jean. Only when you dig deep into Parkinson's do you realise just how badly patients are treated without them realising. Fyi, I will be reporting on a new and much simpler method to make Broccoli Seed Tea very soon.
I am ready to start my husband on Broccoli Seed Tea. Should I wait?
In the mean time I was wondering if Distilled Water could be used instead of Deionized water? Also How much tea should I start him on? He’s not a big man. I was going to start with one dose per week for a while (what ever that means).
I was looking for a link to your FB group to get more information without bothering you. Could you put in a link for me?
Thank you for your help and continued research!! Have a fabulous day!
Gail
The glucoraphanin content of broccoli seeds varies from about 35µm/g for regular seeds to to about 70µm/g for high-glucoraphanin seeds. It is important to begin using BST at a very low dose in order to find the dosing regime that suits your particular case and your sensitivity to BST. For most people this corresponds to the quantity of broccoli seeds containing between 25µm and 35µm of Glucoraphanin (0.8 to 1.0 g of regular seeds, half of that for high-glucoraphanin seeds). Start low and slowly increase the dose over several weeks until you feel an improvement in non-motor symptoms. Stabilise at that dose for several weeks. Note that an increase in urinary urgency is a sign that the dose is too high. After a few weeks you may consider increasing the dose again by 20-30%. The dosing frequency should not exceed twice per week. Distilled water is fine to use.
How much naltrexone and when? Any links for this? I used just 2mg for my prostate cancer 16 years ago with dosing recommendations from Low Dose Naltrexone website ldn.org I think. I had heavy occupational exposure to tce and have tremors.
I was just diagnosed with early onset PD by the exact physical exam you described. I’d like to learn everything I can to stop my symptoms from progressing. Thank you.
Thank you for the information. I am doing some online research to see if I can help a friend.
Celery juice helps with my hands essential tremor. Would like any early diagnosis of Parkinson's as I am getting upper spine and neck tremors in bed. I am 62 in Aug. My friend/neighbor Ed just died at 86 with Parkinson's. Kaiser appt with neurologist said not Parkinson's because I could feel the doctor poking the needle into my skin all over my body evenly.